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No fair!

The fateful elections are now more than a month behind us. We tried our best to tip the scales, but we lost.  As our trip to the Netherlands came closer people asked me, “…and…are you going to look for a house?’ The answer has always been, “no, I need to be in the US, I am going into the resistance.”

Now, on our 26th day in the Netherlands, where it has rained every day except 1, on December 20th when we visited my ancestral town of Dordrecht, I have another reason not to want to live here.  In April, when we went for 3 weeks, we had rain most of the time, except for the last week when the sun came through and we occasionally saw blue skies.  Now it has been raining almost constantly again. A local newspaper headline indicated that it was the poorest performance of sun panels, ever.  All the while we see or hear news from MA, it is cold, but the skies are often blue. I prefer living where I live in the US and if you were to ask me now, whether I would ever want to live in the Netherlands again, no matter what the political situation is in the US, my answer is a firm ‘No, never!’

I can feel very sorry for myself, but then the poor man outside the grocery store wants something from the people going in and out of the grocery store (whether money, food, compassion, or maybe a simple response to his hello) reminds me that I have it so good and I should stop complaining.

Because we chose not to rent a car, and have been staying in cities, we get around with public transport. Compared to where we live in MA, traveling around the Netherlands when you have no wheels is easy, especially if you can walk with ease. Axel has not volunteered to ride or rent a bike (and I would be nervous, especially in Amsterdam, with tram rails to get stuck in and fast e-bikes and cargo bikes zipping around you), our only option is overpriced taxis, Ubers or Bolts (they are never around when you need them) or walking. The distance to where we are, at any point in time, and getting to the closest public transport stop seem to require almost always between 10 and 20 minutes on foot. That’s where the incessant rain makes me want to scream (not fair!!). But then I think of the beggar outside the store, or the people in Gaza or Ukraine or Syria. Not fair!

A new focus

I have interrupted my archiving and transcribing to focus on the elections. I decided that handwringing and despairing would do no good to anyone and certainly not to the outcome of the elections. I joined Voter Pro Pros (VPP), a voter protection program in June. They communicate via Slack, a platform that I used some years ago and now found hopelessly confusing. In September, when the heat started to rise about the elections, I opted to join the Pennsylvania team since that is a critical state with a significant number of electoral votes. I got re-acquainted with Slack and participated in the training, several Zoom recording and live meetings. And then, at the start of this month, when the early voting by mail started, I got busy calling people whose mail in ballots were rejected because of one or another error (wrong date, no signature, no privacy envelope, etc.). I am in a team that covers 15 counties where people cannot fix their ballot errors and must show up on election day to vote a provisional ballot.

I quickly learned that many of the mail-in ballots are from elderly or disabled folks, for obvious reasons. They learned from us that their ballot had been rejected (and would not have known otherwise unless they had included their email in their mail in ballot application). If we get a voter to fix their ballot (possible in some counties but not all) then it is considered ‘cured.’ But many counties don’t allow this and so the voter must go to the polling place on election day. For those who are elderly and/or disabled, this is of course a tremendous challenge. Luckily VPP is connected to other organizations that make sure no vote is rejected since every single vote counts.

Sometimes I spent an hour leaving message after message or listening to not-in-service or disconnected-line squeaks, without reaching any live person. I won’t ever know whether the messages are received, and the voter is able to cast a provisional ballot on election day or not. But at least I am not sitting on my hands complaining.

I do experience the nervousness about this election in my belly, a tension I cannot deny. Whoever wins this election, it is going to be a shit show, either a coup attempt, or if Mr. T wins, a first step on the way to some serious damage to America. One elderly voter I reached said, “people say this is the last election.” He was quite old and so I wondered whether he meant the last election for him, but then he said, no, the last election for everyone in the US. “Is that true?” he asked. I said if he doesn’t get to cast his ballot and if Mr. T wins, then we may well have a president for life, and thus no more elections. “I will cast my vote on election day,” he said with determination.

Archiving

It is a curious phenomenon that I feel drawn to digitize things: journals, letters, photos, slides. Maybe it has something to do with my age. I want to make it easy for our kids to learn about their parents’ and grandparents’ lives before they were born or when they were still very young. And (or) maybe it is because I don’t want that history to be lost to a dumpster.

Some time ago I started transcribing and translating my diaries that chronicle so many transitions, starting in 1976:

  • From husband number 1 to husband number 2 with the accompanying roller coaster rides
  • From one continent to another
  • From dinks (dual income no kids) to parenthood
  • From dinks to single income with kids and living in NYC
  • From the intense learning on the job, both the technical aspects and navigating organizational dynamics myself and learning about them
  • From having aging parents to losing them over a period of 14 years
  • From being healthy, limber and adventuresome to being pulled out of a plane wreck
  • From working full time to working less, and less, and less.

I am far from done with this project, but I started a new one, which is a lot less daunting. For this new project I hired experts who, in exchange for a carload of money, turned my twenty five or so double 8 and super 8 reels of film into an external hard drive with all of those home movies in digital form.

While that project was handled by others, I started to transcribe and translate the letters my dad wrote when he was Tessa’s age and traveled across French speaking Africa, followed by his handwritten letters to my mom. The latter I typed in Dutch and then asked ChatGPT to translate them into English. It was done in a matter of seconds in a way I couldn’t have done as well myself. Even though I consider myself bilingual in Dutch and English, it was humbling to discover how often I had to use AI to find the right English phrases for my father’s interesting and at times funny Dutch phrases. It gave me a new appreciation for people who translated texts before we had computers and easy access to Google-Translate, and especially for those who translate(d) poetry. This project is done now. 

On to the next. There are two projects that have moved to the front burners of the stove. The first is transcribing my mother’s ‘Year by Year book,’ which, according to the publisher (John Walker & Co. LTD), is ‘A condensed, comparative record for five years for recording events most worthy of remembrance.’ She decided to make it a record for the years 1939-1943, which we now know were the war years. It is nothing like my father’s nearly daily detailed letters from Africa, but as the publisher suggests, it contains notes that she deemed worth remembering. And so I learned that my mother and her mother (resp. 21 and 45 years old), skated from Haarlem to Delft to Rotterdam to Gouda to Den Haag on January 2nd in 1940. Even by car this would be a long trip.

I am just beginning this project, but I am already struck that so far there are only a few references to Hitler and the Germans in those cold winter months of January from 1939-1943. I am sure there will be more to follow.

The next project in the long line of projects that are stacked up like  planes on a runway, is my mother’s journal about her trip from Holland to visit girls scouts in Sweden in August 1937 (she had just turned 19 then), together with a few other Dutch girl scouts. That one will require some advanced deciphering skills.

Travels with my dad

My father died nearly 40 years ago. Yet the last two months I have traveled with him. It is the year 1955. He was 39 years old. He left right after the New Year. It was winter, and was going to be a cold one. He left for a nearly 3 months long business trip through French colonial Africa: French West Africa, French Equatorial Africa and Madagascar, to sort out import processes and constraints on Dutch beer. He represented the interests of 11 Dutch breweries, some of which no longer exist or have merged with a few big ones, like Heineken.

I was just barely three years old when he left, and don’t remember his departure. He left my mom with 4 kids under the age of 10, going to a place that was hardly known and may have seemed quite dangerous to travel to and through. He traveled with a typewriter and a stack of onion skin paper that had his office logo on it (CBK-Centraal Brouwerij Kantoor). He typed letters about his meetings, successes, failures, joys and frustrations nearly daily: 8 weeks of travel and 63 single spaced typed sheets of paper with no margins. These were sent to Holland via Air France. They arrived in just a few days. He also sent cables, which he indicated in all caps in his letters.

He also traveled with a woolen scarf, which he promptly left in the KLM plane from Lisbon to Dakar, tropical dress suits, even a tuxedo, and a few shorts and light shirts. He never used the tuxedo and the dress suits because it was too hot and besides, except for Kenya and the Malgache highlands, everyone wore shorts and their shirts untucked, even senior government functionaries.

Air France traveled daily to all the major cities in its colonies, carrying passengers, mail, champagne, good wines, cheeses, caviar and more ordinary foodstuffs such as meat, chicken and vegetables. As my father wrote to my mother, the French colonials work hard and then enjoy the good life far from home that was probably much better than home. He typed all his letters with a carbon copy and then sent those to my mom with a handwritten note on the back of the copy so that she could read what he had been doing that day or those days plus some private reflections.

He traveled in the planes that were common at that time: DC 3, DC 4, DC 6, and Constellations, all fairly new. He would often lunch or dine with the crew when they had a stopover. He did notice that they consumed abundant beer and wine during those lunches and dinners even when they had to take off right after to the next destination. As a pilot myself, it is hard to imagine these pilots (most probably trained as war pilots – it was after all only 10 years after WWII had ended) traversing 1000s of kilometers over deserts and dense forests with few places, if any, available for emergency landings. That my father survived this trip, between the dangers of flying and tropical diseases, diarrhea and dehydration, now seems a miracle to me.

I have traveled widely myself through Africa and have been to most of the places he went to, even slept in some of the same hotels, Dakar, Conakry, Abidjan, Lome, Cotonou, Kinshasa, Nairobi and Antananarivo. I never made it to Tchad, the Central African Republic and the Republic of Congo. (Brazzaville). My father had never been to the tropics and the warmest weather he knew was that of southern France. Arriving in Dakar in Januari, he compared it with the French Riviera. But then he went further south to Guinea Conakry, along the Bay of Benin, the edge of the Sahel in Tchad and the humid heat of central Africa. He suffered greatly, and wrote about the weather a lot to his colleagues and my mother.

He had also never been around blacks. At first he is scared to find himself in a place where the whites are outnumbered and he reflects on how they mingle in daily life but then return to their segregated quarters at night. Of course he would only move around the small circle of whites, the colonials, but he had to deal with the black population in their function as servants and staffing the bureaucratic machinery, taxis and the post office. He represents the attitudes of the times regarding black people and this is manifested in comments that make me cringe and which I found hard to transcribe. The language is pejorative and judgmental. Ouch!

Since he was there for beer, he writes a lot about the beers he drinks and sees on the shelves in hotels and cafes. He also writes about the cost of them, commenting about how expensive everything is. That refers to everything that he needs, which is all flown in from Paris, so of course it is expensive. He also comments on the often excessive alcohol use of both blacks and whites.

He writes little about the political situation, except for a few references to the French Mendes-France government that falls while he is in Africa, and the Mau-Mau rebellion in Kenya which does not seem to interfere with his one and only visit to an English colony.

The economy in French colonial Africa was, of course, entirely in the hands of the French, serving their own interests, with tariffs imposed on foreign imports. French beer was of course not considered foreign, but Dutch beer was. My father spent a lot of time negotiating and navigating the sometimes conflicting interests of the (white) traders (exporting tropical goods, and importing products the whites could not live without) and those of the administration, going back and forth between officials in economic affairs and the chambers of commerce. The trade terminology was foreign to me: quotas, apportioning, duties, but I did get the gist of considerable control that the French exerted about everything. Now and then he writes about liberalization, but that is still far in the future, as is decolonization and independence.

His three days in Nairobi let him to reflect on the difference between French and English colonial Africa. In French colonial Africa, he writes, the blacks are French citizens, while in Kenya they are not British citizens. He writes about the language the local speak, which is of course influenced by the blacks he interacted with: In French West and Equatorial Africa they all speak French. In Kenya they speak their own languages. He also notices how everything in the French colonies is done, as we say in Dutch: ‘met de Franse slag,’ which means doing things loosely, incompletely, informally, and half-heartedly, while in Kenya he is struck by how formal everything is. For example in the New Stanley hotel he is told that after half pas 6 in the evening he is warned by the receptionist that he has to wear long pants, a coat and a tie. in fact, he wears that a lot because of course the weather is cool and everyone else does it.

In Kenya he gets his first real taste of wild animals roaming around free (other than the occasional monkey in the Congo). He is ecstatic about that experience. He also finally finds himself in a place where he can find souvenirs for his kids: a Kikuyu bow and arrow for my older brother, a switch supposedly made from hippo hair for my sister, and a wooden giraffe for other brother. But he doesn’t write about the black doll I had requested (which, as the story goes, my mother bought in the local toy store). I still have an African cloth doll but it is not clear where that came from since it is not mentioned and I surely would not have liked it as a 3 year old – it actually scared me as a child).

Now that i am done with the transcribing and translating, I feel a bit sad because I am back in 2024 and he has left me, again.

Pain

Recovering from my second knee operation. It has been 10 days now and I am mending. It is good to have the experience of the first knee under my belt (or ‘onder de knie,’ (under my knee) as we say in Dutch). I learned a few lessons, like not trying too hard, and putting things in perspective.

I am feeling less sorry for myself than I did before. Partly this is due to the realization that I have nothing to complain about: I have a very comfy place to serve as my recovery base, I have health insurance that pays for most of my expenses, I have a husband who keeps the household running, friends who bring soup and plant daffodils, an icing machine that keeps my knee iced, pain medicine, a good stack of books…the list goes on and on. When reading about doctors operating in Gaza without anesthesia or pain medication I shiver, unimaginable. I have nothing to complain about and it puts things into perspective.

The war in Gaza has made me revisit study books about conflict and what perpetuates it. We should know this by now. Retribution and vengeance have never stopped cycles of violence. On the contrary, they perpetuate them. So why do we keep siding with one party or another, hoping they win (and thus the other loses)?  What makes us think that this will help anything other than our own sense of righteousness? 

Our Quaker community decided to send a letter to the editors of several local newspapers. A small taskforce drafted the letter. Politics creep in, it is hard not to let that happen. We went back and forth. Eventually we agreed on a letter that is not about who is right, who has been wronged, etc. but rather about the Quakers’ steadfast believe in and commitment to the power of love and compassion. This will compel us listen to each other and remind us of our shared humanity. It is not about Muslims versus Jews or Christians, but rather about land. Land is money, and money allows a lifestyle that those without money cannot attain. There are always people that benefit from the war, and they are invested in encouraging behaviors that will perpetuate the conflict. We should be careful not to fall into the trap of believing the war mongers because our interests are not theirs.

Setback

Can one try too hard? It is the hyper achiever in me that tried to beat the odds and accelerate my recovery. Not so fast buddy! I had noticed something hard right behind my knee. Whatever it was, it was getting in the way of the knee bending exercises, the calf stretch, the heel-raise exercise, and walking.  I pointed it out to my physical therapist who started to explore and then massage it. Given that blood clots are still possible at this post-op phase, and that massage of the clot is the worst you can do, I made him nervous when I mentioned this. We cut the therapy session short, and he urged me to have someone make sure it was not a clot. Urgent care or emergency room? We decided to go to urgent care. That turned out to be a smart move. The urgent care doctor ordered an ultrasound which he was able to arrange within the next hour. At one of the local hospitals. We were able to let go of the fear to spend the rest of the day, and maybe even an evening at the ER. We were home a few hours later with the good news that it was not a blood clot but rather a fluid-filled cyst, making me wonder whether it was the result of my overly enthusiastic attempt to get my knee bending like normal as soon as possible.

What to do about the cyst is not clear. I alerted the doctor’s PAs. We’ll see what can be done. In the meantime, I did my own research and learned that one should apply heat. And here I had been putting an icepack at the back and front of my knee three times to four times a day. After putting a hot compress against it a few times, it has not provided much relief (yet).

I also researched post-surgery opioid withdrawal and learned some surprising things. A reputable medical website, and several others I trust, suggest limiting opioid pain meds to no more than two weeks. I had been on them for 4. I (re)discovered that I am very sensitive to opioid pain medication. I will never ever take it again if I can help it (I have another knee replacement ahead of me, maybe next year). On Monday I am starting my 2nd week of withdrawal. The symptoms (there are many and I have experienced/am experiencing many of them) seem to get worse rather than subside: upset stomach, jittery, chills, too cold or too hot, diarrhea, nausea, nothing tastes good, bad taste in my mouth that no food, no matter how delicious under normal circumstances can remove, and finally no or low appetite. If my last memory of withdrawal from 2 weeks of taking Oxycontin thirteen years ago was only three days of yuck, I may now be in for a whole other week. 

The combination of the cyst and the withdrawal broke the fast (too fast?) linear progression towards recovery. Today I meditated about all this in my Saturday morning Music & Imagery  (M&I) group. In M&I, after an initial meditation we express on how we feel right now using color, shapes, texture, and then express on paper what we want more of. We then listen to 3 pieces of music selected by our facilitator (and friend) Christine and draw what the music brings up in us and give it a title. The last piece is of our own choosing. I choose music that is a very old friend of mine and that not only brings wonderful memories back but also is soothing in the present. The themes in my drawings contain my marching orders for the rest of my recovery. The titles of the 6 images of today were: Can-do-won’t-doLooking for more humility and less pushyLooking for some pleasant surprises; No shortcutsThe weather will improveDrop the main sail, go slow and steady!

At the start of month 2

Two days after the one-month mark, I realized I may have taken the corner a little too fast. This included getting off the opioids. I had set myself a goal of switching completely to Naproxen and Tylenol. My body didn’t like it and I slid into withdrawal, a feeling I recognized from when I was getting off the Oxycontin after two weeks of use after the plane crash, now 15 years ago. I had not expected to have that experience (it is not as intense, but still) in kicking the Hydrocodone habit, since it has a much shorter shelf life (4 hours instead of a continuous administration every 12 hours).

Despite the uncomfortable nights and the withdrawal symptoms, I have made good progress in bending my knee (120 degrees as of yesterday) and strengthening the muscles surrounding the knee. The accomplishments have required a great deal of perseverance, discipline, and grit to do the 3 times/day exercises and two intense PT visits a week. 

So all in all, everything is going in the right direction.

Turning a corner

Close to the four-week milestone of postoperative recovery, I have completed the turn of the first corner. I can do things now that I was unable to do even a short week ago, like getting out of a chair without pushing myself up with my hands or pedaling all the way around on a stationary bike, things I couldn’t do 2 days ago. I am done with the pain pills during the day, only still at bedtime and in the morning when I get ready for my first round of exercises for the day, bringing me closer to the goal of getting off the opioids entirely next week.

Today my physical therapist measured the angle of my bent knee at 115 degrees. This is 10 degrees more than last Monday, and 25 degrees more than when I was released from home care PT on May 19. This has not been an easy accomplishment: three daily rounds of uncomfortable exercises and a lot of huffing and puffing and icing. The goal is 120 degrees. This is the angle at which I should be able to do most of what a knee is supposed to be able to do in terms of daily living activities. Maybe I will get to that next week. We are starting to add a few more strengthening exercises which Axel and I can do together because many of his are the same.

Today we did another walk along the Gloucester Esplanade. It was a beautiful warm day with a cool sea breeze.  I walked for 15 minutes without a cane. That too is progress. For the first time I noticed how smoothly my new knee is operating, not distracted by walker or cane or a knee that didn’t yet want to bend much. It is smoothly sliding back and forth, painless compared to the pre-op grinding of bone on bone. That is still happening with the other knee which made the contrast even more noticeable. In the not too far future, the left knee will need the same treatment. This is one of the reasons I keep this weekly log so that I know what to expect when the pain memories have disappeared. The prize at the far end of this knee replacement business is two sets of artificial knee joints happily gliding along without friction allowing for long walks again. Hopefully sometime in 2024 I can look back and wonder why I waited so long.

A soft corner

I am at the three-week mark now. I think I have rounded a first corner. It’s a soft rounding, not a sharp turn. Gone are the sharp pains that require a constant supply of opioids. Now the pans are more of the ‘gnawing/nagging’ type, a level of discomfort in the background, always. But these are no longer keeping me from sleeping and the awkwardness of having to sleep on my back is gone. I can sleep on my sides which allows for much tossing and turning.

Yesterday we went to the Gloucester Esplanade. It is Axel’s preferred walking place that has beauty on both sides: the flowers planted by the Generous Gardeners on one side and the ocean on the other. We were not the only ones. On a warm day like it was yesterday, all of Gloucester seems to stream to this magical place. We walked for about 15 minutes, me with a cane, and then Axel continued his walk while I rested in the shade by the Bocci courts with an icepack on my knee and my giant (800+ pages) book (The Luminaries by Eleanor Catton), a page turner I could not put away.

I continue to do my exercises 3 times a day. Some days, when I push my limits a bit too far, they leave me crippled. I decided to back off a bit and not push quite as much. I must remember about moderation rather than my tendency to assume it is all-or-nothing.

This week is starting to normalize again. Normal meaning that I won’t spent whole days mostly lying on my bed. Of course, this allowed me to read my 800-page book which otherwise would have taken me months. I have a few doctor’s appointments, unrelated to my knee, and a few hours of paid work.  I am easing back into the world.

Biting through

Two weeks ago I couldn’t do much with my knee, just a slight bend, hobbling behind my walker. Now I can bend it 90 degrees and can walk with ease, even without a cane. 

Last week I was graduated from home based physical therapy to outpatient PT. I had my first evaluation to establish the baseline. It was pretty good in terms of numbers but not so good pain wise. It had not occurred to me that having the visit to the surgeon and PT within hours of each other might be a bit much. By the time I arrived home I was in great pain and exhausted, especially after we tacked on a visit to Whole Foods to get some lunch as Axel was starting to get hangry and I was irritable because of the pain.

I decided to skip the evening round of exercises and went to sleep early, with my head down and legs up. I slept well except that my body wakes up each time I need another pain pill. I don’t have to set an alarm. The body knows when the next one is due.

I now realize I had underestimated the recovery and the effort it takes to function well with a new knee. I had listened to many people who had had knee replacements done in the past and all were very happy. I think they had forgotten those unpleasant moments as we humans have a great capacity to forget about pain. If we could re-live pain as it was, in all its intensity, women would probably have no more than one child. 

And so, I had listened to the stories that included ‘a few days of intense pain,’ or, ‘after 10 days or 2 weeks things got better,’ and believed them. I am writing this all down so when it is time for the next knee, I can look up what things were really like: very unpleasant, to put it mildly, and this said by someone who has a great deal of tolerance for pain.

Over the last few months before the operation, I had struggled doing the stretching and strengthening exercises that the knee doctor had recommended. They were rather overwhelming, more than an hour a day. At first, I decided to not do them at all, an illogical response to the overwhelm, from all to nothing. Finally, about 6 weeks ago, I split them up in half, doing one half each day. I was able to do that up to a week before the surgery because my walking was starting to deteriorate. I blamed the exercises and did not know what to do until Tessa reminded me that our bodies know what to do. I asked my body and it said: stop! 

That month of exercises is now paying off, as people had told me it would. I must remember that too. Most of the exercises I do know are the same as the ones I did before, except they are so much more difficult and exhausting. My motto is ‘biting through,’ knowing that this too will come to an end.


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