Archive Page 281

Sunday, July 29, 2007

Sylvia and Axel were able to reunite today for a few hours at Axel’s new digs. It was pure voyeuristic joy to see Axel and Sylvia reconnect, exchange kisses, and quiz each other about their respective maladies. Both look and behave markedly stronger than that at the last visit about a week ago.

 

The other day Axel heard some of your Guestbook entries read to him. He found these so very moving and comforting. Today he has begun reading the Journal entries himself. These were equally moving, but in a different way. The entries by Sita and Tessa, which reveal their courage, strength, and resourcefulness, brought up a father’s tears of gratitude, pride, and love. We should all have such children.

 

Relief #6 – Axel sat up, and then stood up, and then took steps to settle comfortably (sort of) in a wheel chair – all with the help his new “physical terrorists”. We achieved lift-off at 2:30pm ET and the Eagle landed at 2:32 PM. I don’t remember if Orville and Wilbur Wright did as well on their first flight, but Axel was superb. Once in the wheel chair Axel realized that he was able to do one more important task of daily living, drink without a straw. When sitting all the way up, even with a neck brace, the likelihood of pouring liquids down your collar diminishes dramatically. He stands. He takes steps. He sits up. Bravo.

 

A second realization was that he no longer had to respond to a leash – not to a bed, or wall, or anything. With catheter bag slung from his wheelchair under-carriage (reminiscent of Paul Bunyan’s mythical great ox, Babe), we were wild, free and ready to rumble.

LET’S ROLL! So, without further adieu freedom was on the move and heading for the deck garden on the roof of the third floor. With the exception of the transfer from hospital to ambulance yesterday, this was Axel’s first fresh air and open sky in two weeks. Flowers. Fountains. Tomatoes in planter boxes. Sky.

 

That trip outside, plus the flight from bed to wheelchair were all unexpected happy achievements today. Axel responded like anyone being informed of an imminent pardon from prison. He was breathing in the air and the real prospects of returning to a full life beyond a hospital room.

 

It was a big day, a turning point day, and, I’m sure he will sleep well tonight. Perhaps the first good night of sleep in two weeks.

“I have had dreams and I have had nightmares, but I have conquered my nightmares because of my dreams.” – Jonas Salk

Sunday, July 29, 2007

Things are going really well. I just came back from Salem with Mom, we had a great visit with Dad and got to see him take some steps on his own (with the aid of a walker), then sit down into a wheelchair. It was quite a thrill to see it all happen, I took some pictures, but cannot post them until Sita returns, but they will be posted soon. It is great having Dad so much closer, and it is even greater to see the amazing progress he is making. Tomorrow is his 61st birthday. We have scheduled a few visits already but don’t want the day to get too hectic as he will be busy with physical therapy as well. However if you would like to call and wish him a happy day he has his cell phone by his side, the number in case you don’t have it is: 1(978)902-0824. He is in great spirits and feeling good about his major accomplishments today. Things are looking up!

Sunday, July 29, 2007

Glad to read another contributor to the journal and more eye witness reports about Axel. His computer is also in rehab but as soon as it returns I hope that Axel himself can start to post. For now Joe or Tessa or Sita will do that for him.

Yesterday I wrote about the two necklaces. There are a few big and prominent beads on the necklace of sighs and disappointments which I did not mention because they are so hard for me to look at and describe. These are the beads that represent Axel, Joan, Morsi and Neveen and Ahmad (Morsi’s children). Something momentous has happened in their lives for which I am responsible. This is as far as I can go with it, now. (By the way, they are also beads on the necklace of blessings, where I can look them more squarely in the face).

The first few days after the accident I had this movie playing in my head and I was trying to give it another ending. This compulsion has stopped now. The movie still starts sometime but then I physically turn my head away – I don”t want to see what happens next.

One of these days I have to tackle the big brown manilla envelope which contains the paperwork that I need to fill in for the NTSB. I have asked Arne from the Beverly Flight Center to assist me in this. Arne, I think the time has come to do this, what about Monday?

The plane(wreck) is in Maine somewhere. Suddenly it had left Gardner airport, before Jim was able to get our belongings out. (I am especially anxious to get Axel his backpack with his notebook and camera back. As you know he did not travel anywhere without these two items.)

Antony from Baku had asked what about the plane….well, it is a wreck. If you google my name plus words like small airplane crash and/or Gardner airport you will see that question answered quite clearly.

The night is still cut up in countless half hour segments through which I move in slow motion. I have given up on getting the pain medication right. I should have known that there are constantly changing dynamics in my body and between my body and mind, which makes settling on one fixed dose impossible. Nurse Tessa is doing her best but here no one can advise me I fear.

I am going to visit Axel this morning. We had a plan to visit him yesterday but my body tends to be at the end of its rope by the time 6 PM rolls around and protests against even the most minor challenges. A road trip to Salem seemed like a cross country trip.

Tomorrow is Axel’s 61st birthday. I have a lot to be thankful for.

Saturday, July 28, 2007

As Axel and I are want to do, our conversation drifted yesterday afternoon and this morning to the consulting projects that Axel has been coaching me on at least bi-monthly for years. We have been cultivating new approaches to regional visioning and community planning with an eye toward sustainability.

Relief #4 – Characteristic of Axel, the stream of astute and probing questions began to flow. My friends, he is all there. Whew…now that’s a relief. I should hasten to add that he now has a copy of the new Harry Potter book, and he wanted to know the plot twists for the two preceding books he has skipped. The last one is tough to follow if you haven’t done your homework. Mercifully, I filled him in.

He is enjoying the stimulation of real dialogue about real things of importance. He said it was great to get some conversation that wasn’t about his injuries, or other people’s injuries, or the damn puree. He’s all there. It would be a service to him to engage his mind as before. Think of it like visiting the Oracle in the matrix, except it’s Axel that’s plugged in, or Yoda in his little hut in the forest. I believe it will be one more lifeline pulling him back to productivity, self-esteem, and a vision of a bright future.

As a reminder of why it is so important to get out of a hospital as quickly as you can I will relay the following vignette. After Axel had consumed one of Sita’s a fine fruit smoothies, he said he had a bit of heartburn. So, he rang the nurse’s call button. When a voice from the intercom on the wall behind the bed answered, Axel asked for some Tums to settle his tummy. Sita repeated the request to be sure they heard it clearly. Moments later, Tung, the Vietnamese orderly appeared in the room asking what Axel wanted. Axel said, “I’d like some Tums, please.” Tung said “Your tummy?” “Yes” said Axel “I need some Tums for my Tummy.” “I’ll get your nurse,” replied Tung.

A few minutes later Axel’s nurse appeared. “I brought your pain medicine.” “I don’t need painkillers, I need some Tums” replied Axel. “Oh, alright. But here, take these anyway” she said. Axel complied. A few minutes later she came back with the Tums (two rolls). Yikes!

Relief #5 – Axel moved today to the Shaunesy Rehab Center at the Salem Hospital.

The ambulance drivers got lost, but got there. I got lost too. Between Harry Potter in the CD player, and that @#%&! navigator lady in the dashboard, I damn near drove to Providence before I came to. Between disc 4 and 5 I had just given myself another hour of driving through the middle of Boston.

Axel is now settled in a more spacious room with a larger window and a view of trees. He is feeling very pleased to be taking control of his body back from Tung and the UMass machine.

The march up Rehab Road begin tomorrow. “…But we must learn to be equally good at what is short and sharp and what is long and tough. It is generally said that the British [and Magnusons!] are often better at the last. They do not expect to move from crisis to crisis; they do not always expect that each day will bring up some noble chance of war; but when they very slowly make up their minds that the thing has to be done and the job put through and finished, then, even if it takes months – if it takes years – they do it.” – Winston Churchill.

Saturday, July 28, 2007

A quick update on the latest events. Axel has arrived in Salem. Joe was with him. He was eating real food (tuna fish sandwich) and in great spirits. The place is nice, airy, lots of windows, trees. He is sharing a room with others. I can’t wait to see him. Tessa will bring him his own cellphone (978-902-0824). I have no other number yet. I will post the address shortly. In the meantime check the website of Shaughnessy Kaplan Rehabilitation Hospital for directions and info about visiting hours. We expect him to be there for a couple of weeks.

And keep those prayers, Reiki, vibes and other good vibrations coming, we are sucking them up (and it shows!)

Thanks Jeanie for the most amazing collection of brownies that aren’t brown; Carol, Ken and friends for ‘sitting’ me and bringing another extraordinary lunch, and their daughter Jenny for Zoology. Thanks Catherine for the fastest response to my request for zoethout thee, and thanks for all your entries in this guest book. They cheer us all up.

Saturday, July 28, 2007

I was very aware of the end of the graduation ceremony of the BU course yesterday. Here I am listed as faculty and never showed up. Another disappointment among so many others, the things I cannot do, we cannot do, have to cancel/postpone, mourn, etc. It’s like a necklace, each bead comes with a sigh: the Bastille party at Anne and Chuck, the cookout at our house with the BU students that was to take place the 15th, the salsa dancing at Castle Hill, Flying to Martha’s Vineyard, with Axel and Andrew, a tour over Essex county with Karen and Sarah, kayaking with Axel and the St. Johns, followed by a mussel meal on our beach, tending the garden and picking its goodies, picking the ripest raspberries just minutes before the chipmunks show up before going to work at 6 AM, etc.

There is another necklace that has mostly covered up the one made up of disappointments and that is the one with the blessings. Each bead is one blessing. It is an enormously long necklace: the bog and trees that broke our fall, the rescue teams that got us to the hospital, the resilience and strength of our bodies, our daughters and their mates, our families, the many friends and acquaintances who are rooting, praying, cooking, driving etc. for us, Blue Cross Blue Shield, MSH, my many colleagues and friends in far away places, the Beverly Flight Center staff, our neighbors, the Gloucester Visiting Nurses, etc. This necklace is on top!

I am full of anticipation for this day, which brings week two of our recovery to and end. I am celebrating Axel’s transfer to Salem and hope to see him later. Sita went back to Amherst to take care of her own life for the weekend, make some music and pack up for the move to Lobster Cover. Tessa has taken over the RN role and is learning about dosage and pain medication while Steve is busy setting up the pen for Tessa’s rabbit Nijntje so we can all be together again.

I had a visit early (Friday) morning from Judy Seltzer, beating traffic all the way from Ashland, we had a nice time while the rest of the household was in deep sleep. I had my first cup of coffee since the accident. Another first, sitting outside at the end of the day, a glorious evening at lobster cover, I sipped a pretend beer (O’Doul) and it tasted like a real beer. I am surely but steadily getting better!

Friday, July 27, 2007

This morning Sylvia is holding court in her command lounger stationed adjacent to the kitchen. What better spot to stay connected to the heart of this house? The pulse of the refrigerator door opening and closing with a steady flow of hungry youth Sita, Tessa, Steve, and now me (not so youthful), is one clear reminder of how much life is in the house. The other is the phone ringer, which goes off about every 5 minutes this morning. Where is the wireless handset this time?

 

Relief #2 – In the morning light it was clear that Sylvia is all there. She proudly displayed the improvements in skin tone under her arms and so on. It’s like turning the clock backwards on an over-ripe banana – except it’s coming back to mammalian pink, not plant green.

 

In the afternoon I set out for Axel’s hideout at UMass Worcester. FYI – When visiting don’t reveal ignorance of regional customs like I did – it’s pronounced “Woosta”. The two-hour drive was made more fun by a competition for attention between the new Harry Potter story in the CD player and the otherworldly voice of the electronic navigator widget/lady in the rental car dashboard. It’s like magic!

 

I arrived to Axel’s room to be met my Les and Leslie who were in with Axel. The room was festooned with African fabrics, photos, and a veritable tropical jungle of orchids, flowers, family photos, and lobster art. And there in the middle of it was Axel.

 

Once past the awkwardness of bedside greetings (which part to touch? which part hurts?) we settled in. This got easier the shock subsided… his half-shaved head, the pirate eye-patch, the assorted body armoring braces (looks like white and blue samurai battle gear), and the cleanly healing forehead scar (dueling with death again?). Since Harry Potter, forehead scars are all the rage. I’m thinking of getting one myself.

 

Relief #3 – Once we had the room to ourselves, I got a better chance to look into his eyes, squeeze his good hand and find my dear brother Axel. What an immense relief to see him looking back. We’ve never been much for “light frothy” chit-chat, so without delay we got down to the fraternal business of how well the family is being cared for and how the networks of globe spanning Magnuson-Vriesendorp networks have self-organized to deliver tender care, material support, and love. It is so clear that the world is moving to ensure that our treasured Axel, Sylvia, Sita and Tessa are ushered safely into this new, albeit dramatically opening, chapter of their lives. Axel gets it.

It was our collective stirrings that welcomed him back after the dark hours a few days ago when the cocktail of stress, mood meds, painkillers, and strange surroundings plunged him into hours of anxiety and hallucinated topsy-turvy realities. He said he could tell from the visitors coming that benevolent forces were embracing he and his family, even though he didn’t know what they were.

Friday, July 27, 2007

An ambulance will take Axel tomorrow to Shaughnessy-Kaplan Rehabilitation Hospital in Salem. We are thrilled to have him closer by and starting this new phase in his recovery. He called me with the good news and was in great spirits. He did more sitting and standing up today and obviously did well enough to make this decision. Stay tuned.

Friday, July 27, 2007

Last night I went to bed at 8 PM ‘in pieces.’ The VNA nurse had already told me that my body is still in shock and I think last night it went ‘out of shock’ for a moment. Every cell, bone and muscle hurt and I preferred to get back to the ‘in shock’ state. I think I said something like ‘I feel like I have been in a wreck.’ Thanks to chemicals for better living I fell into a long dopey sleep. It stopped the pain and the tears.

I feel better now. They aches continue of course but they are manageable even though I am at the end of my dopey night.

Yesterday I finished my first book since the accident (Stormy Weather by Carl Hiaasen) that Ann Buxbaum brought me early last week. I remember seeing the size of the book and thinking I could never finish a book like that. But I did and it was just the right book. In the meantime Sita’s friend Jenny who is an editor sent me a stack of her books and I am enjoying the anticipation of my next good read.

As you have already seen in earlier writings, small things have become huge accomplishments, paying bills, renewing the car registration online, transferring car insurance from us (not going to be driving for some time) to our daughters and sons-in law, etc. all these are reasons for celebration (who’d have thunk).

I am pecking away at the food that is still flooding in and am now helped by a few hungry young folks who are working hard on my comfort and deserve good meals. I am thrilled that Birgit’s recipe for Gazpacho from Beirut that appeared in the guest book has been transformed into real gazpacho by Diane and was dropped off yesterday afternoon.

I also had my first experience of Jewish comfort food: Kugel and Matzoh ball soup (AS Ann Lassman wrote us ‘better than WASP comfort food like fluffernutter.’) I totally agree, it was just what the doctor prescribed. We are trying to get some to Axel.

I talked many time to Axel yesterday and he had a good day except at the end when the physical therapist tried to stand him up. That was painful and discouraging and a clear indication of the next challenge for him. These talks buoy me but also make me miss him terribly.

Thanks to all of you who visited Axel and who got a peek at the reality of his current condition. It will help see the progress later on.

Joe Sterling arrived in the middle of the night from San Diego, which means we have a new caretaker on our team. As always, Sita and Tessa and their wonderful men are making up a thousandfold for the trials and tribulations of their teenage years. Pay back accomplished, enough already! I am so totally awed by them.

A request to my Dutch readers:
ik drink liters zoethout thee (koud) per dag en krijg zo genoeg water naar binnen, maar de zoethout thee zakjes zijn bijna op. Kan iemand ons wat (AH) zoethout thee opsturen? het is hier niet makkelijk te krijgen.
En de Texelse schapen voeten creme die ik indertijd met Sietske op de geitenboerderij in het Amsterdamse Bos kocht wordt dagelijks gebruikt voor Axel’s voeten en is nu ook bijna op. Voordat Tessa zoekt naar iets soortgelijks hier, laat even horen of iemand dit kan opsturen.

Onwards, forward, where else?
s

Friday, July 27, 2007

As a Lobster Cove houseguest I have been promoted to journal co-author (I’ll hand off the baton to the next houseguest that arrives).

Most of my entries will be about RELIEF. It’s not entirely clear whose relief these will be about – Axel’s, Sylvia’s, Sita’s, Tessa’s, or mine. In any case, I’m beginning to get what being a “relief worker” means. I, for one, feel better already!

 

7/26 – I arrived after a trans-continental flight about 2AM (7/27). Sita, who was busily transforming the barn for she and Jim to occupy while caring for dear ‘ole mum and dad, greeted me. Hmmm…“Little House on the Cove” I thought. How practical, how natural, and…wait a minute…does Axel know is complete collection of Wired magazines (ALL issues save one) has been moved? Oy…and what about those papers from 1978… you know, the ones intermingled with those papers from 2005 and the drink coasters from that great South African bar?

Relief #1 – Sita looked well, no worse for the wear of the first 10 long care-giving days. Upon arrival, I was graciously fed and then shown straight into the well-feathered healing nest that was once Sylvia’s office. And, there, in the dim light, was a sleepy and characteristically welcoming Sylvia.


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